PERC Publications

• Sara Santarossa, Ruth A. Blake, Heather Buchanan, Mercedes Price, Rachael Guzzardo, Craig Guzzardo, LaKenya M Johnson, Jacobeth M Morshall, Andrea Bate, Wayne Bate, Riziki Bakari, Leah Copeland, Dana Murphy, Ashley Redding, and Amy Loree. (2025). Beyond the Status of Health: A Collection of Stories Representing Diverse Maternal Mental Health Perspectives. Journal of Patient Centered Research Reviews. Link
• Coyne, P., Susick, L., Schultz, L., Santarossa, S., Gough, P., Rice, S., ... & Bilicki, V. (2024). Using Care Navigation to Improve Patient-Reported Outcomes Among Older Adult Patients: Preliminary Results From a Pilot Study. Journal of Patient Experience, 11, 23743735241272152.
• Santarossa, S., Baber, M., *Hussein, J. et al. Using action research and a community-academic partnership to understand clinical trial participation: a patient-centered perspective. Res Involv Engagem 10, 61 (2024). https://doi.org/10.1186/s40900-024-00593-z
• Santarossa S, Ashley Rapp, MPH, Laura Susick, PhD, Mackenzie Connell, MPH, Karissa Kao, MPH, and Jean M Kerver, PHD. (2024). Exploring preliminary dietary intake results using a novel dietary assessment tool with pregnant participants enrolled in a birth cohort BMC Research Notes, 17(1), 42. Link
• Ashley Redding, Sara Santarossa, Chaewon Sagong, David A Kalmbach, Christopher L Drake, Melynda D Casement, Philip Cheng, “Life Will Never Be the Same”: A Qualitative Analysis of the Impact of COVID-19 on Adults with a History of Insomnia, SLEEP Advances, 2023;, zpad046, https://doi.org/10.1093/sleepadvances/zpad046
• Ashley Redding, Sara Santarossa, Dana Murphy, Mary Priyanka Udumula, Adnan Munkarah, Miriana Hijaz, and Ramandeep Rattan. (2023). A patient perspective on applying intermittent fasting in gynecologic cancer. BMC Research Notes 16, 190 (2023). https://doi.org/10.1186/s13104-023-06453-5
• Philip Cheng, Sara Santarossa, David Kalmbach, Chaewon Sagong, Yixin Hu, Christopher Drake. Patient perspectives on facilitators and barriers to equitable engagement with digital CBT-I. Sleep Health. https://doi.org/10.1016/j.sleh.2023.07.003
• Hecht, L.M., †Adams, R., †Dutkiewicz, D., †Radloff, D., †Wales, M.N., †Whitmer, J., Murphy, D. & Santarossa, S. (2023). “Healing can be a Very Jagged Line:” Patient Reflections on Life as a COVID-19 Long Hauler. Journal of Patient-Centered Research and Reviews. 2023;10:77-81. doi: 10.17294/2330-0698.2000
• Santarossa S, Redding A, Murphy D. (2023). Pioneering virtual body mapping: A methodological guide for researchers using a health-affected population as example. American Journal of Qualitative Research, 7(2), 73-88 https://doi.org/10.29333/ajqr/13016
• Lyons, N. A., Redding, A., Susick, L. L., Leydet, E. M., Tyra, M. A., & Santarossa, S. (2023). Using New Age Recruitment Methods: Advantages and Disadvantages in Birth Cohort Research. International Journal of Social Media and Online Communities (IJSMOC), 15(1), 1-15. http://doi.org/10.4018/IJSMOC.324057
• Sara Santarossa, Ashley Rapp, Dana Murphy, Janine Hussein, (2022). The patient perspective on COVID-19 restrictions lifting: a descriptive study of resuming in-person meetings. Journal of Covid Research and Treatment. 1(1). DOI: 10.58489/2836-3604/002.
• Olden HA, Santarossa S, Murphy D, Johnson CC, Kippen KE. 2022 Bridging the Patient Engagement Gap in Research and Quality Improvement utilizing the Henry Ford Flexible Engagement Model. Journal of Patient Centered Research and Reviews, 9(1), 35-45. doi: 10.17294/2330-0698.1828 

In press

• Sara Santarossa, †Becca Austin, †Molly A. Bell, †Samantha C. Henry, †Ashley Inclima, †Hailey Maddox, †Tara G. Smith, Leah Copeland, Dana Murphy, Ashley Redding, and Amy Loree. (in press). The Art of Resiliency: Patient Stories of Maternal Mental Health Experiences.  Journal of Patient Centered Research Reviews.
• Ashley Redding¹; Leah Copeland¹; Dana Murphy¹; †Karen Clemmons-Lloyd²; †Kimberly Cummings²; †John Doyle²; †Sandy Kesavan²; †VeRonica Mitchell²; †Deyal Riley²; †Linda Stechison²; Sara Santarossa^1,3  (in press) Bridging the Gap: Empowering Patients as Research Partners through a Structured Training Program. Research Involvement and Engagement.
• Liz Lockhart, PhD, Jordan Gootee, BA, Leah Copeland, BA, DeAnne Turner PhD. Willingness to be contacted via the patient portal for health screening, research recruitment, and at home self-test kits for health monitoring: A Pilot Quantitative Survey.