Von Hippel-Lindau Support Services

Henry Ford Cancer Institute Cancer Support Services

• Cancer Support Groups and Classes
• Integrative Medicine for Cancer Patients
• Exercise Program for Cancer Patients (ExCITE)
• Genetic Counseling
• Fertility Preservation
• Caregiver Services
• Behavioral health
• Nutrition
• Rehabilitation
• Survivorship
• Palliative care
• Colleen’s Corner- Local & National Resources

Ask a Cancer Support Specialist

Disease and Treatment information from the Henry Ford Cancer Institute

• VHL Treatment
• VHL Screening
• What to Expect at our VHL Clinical Care Center 

Disease and Treatment Information from National Sources

• National Institute of Health
  • Von Hippel-Lindau syndrome information and resources
• American Society of Clinical Oncology (ASCO)
  • Von Hippel-Lindau Syndrome information on Cancer.net

Talk with other VHL patients

• The VHL Alliance
  
  • Facebook group (private)
• Imerman Angels 
  • A program that provides personalized connections that enable one-on-one support among cancer fighters, survivors, and caregivers. Phone: (866) 463-7626.

Organizations

• The VHL Alliance
  • A non-profit organization dedicated to improving diagnosis, treatment, and quality of life for individuals and families affected by von Hippel-Lindau (VHL) disease