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Neurofibromatosis Support Group

This support group is hosted every other month for patients with Neurofibromatosis types 1 and 2 and their care partners. Medical experts will present topics, and participants will have opportunities to discuss, meet others, and build community.

Contact: Nestelynn Gay

Registration Instructions:

When you register, please choose either the in-person or virtual option for the date you will be attending. 

Fee:

Free

Dates Offered:

February 17, 2025 5:30 PM - 7:00 PM

Register for this class if you will be attending in-person at Henry Ford Cancer-Detroit.

This month's speaker is Dr. Tor Shwayder, Director of Pediatric Dermatology at Henry Ford Health. 

2800 W. Grand Blvd.
Detroit, MI 48202
Seats Available: 25
February 17, 2025 5:30 PM - 7:00 PM

Register for this class if you will be attending virtually. You will be sent the virtual link a few days before the event. 

This month's speaker is Dr. Tor Shwayder, Director of Pediatric Dermatology at Henry Ford Health. 

Virtual Meeting
Detroit, MI 48202
Seats Available: 49
April 04, 2025 1:00 PM - 5:00 PM

2025 Neurofibromatosis Patient & Caregiver Conference

Get ready to explore the cutting-edge developments in neurofibromatosis treatment! Listen as our experts discuss the latest breakthroughs and ongoing research aimed at uncovering additional treatment options. Connect with fellow patients and caregivers to share experiences and insights and learn about programing designed to support the neurofibromatosis community.

Click here to register. 

1 Ford Place
Detroit, MI 48202
June 16, 2025 5:30 PM - 7:00 PM

Register for this event if you will be attending in-person. 

This month's speaker is Dr. Jules Constantinou, Pediatric Neurologist at Henry Ford Health. 

2800 W. Grand Blvd.
Detroit, MI 48202
Seats Available: 25
June 16, 2025 5:30 PM - 7:00 PM

Register for this class if you will be attending virtually. You will be sent the virtual link a few days before the event. 

This month's speaker is Dr. Jules Constantinou, Pediatric Neurologist at Henry Ford Health. 

Virtual Meeting
Detroit, MI 48202
Seats Available: 50
August 21, 2025 5:30 PM - 7:00 PM
Register for this class if you will be attending in-person at Henry Ford Cancer-Detroit.
2800 W. Grand Blvd.
Detroit, MI 48202
Seats Available: 25
August 21, 2025 5:30 PM - 7:00 PM

Register for this class if you will be attending virtually. 

You will be sent the virtual link a few days before the event. 

Virtual Meeting
Detroit, MI 48202
Seats Available: 50
October 20, 2025 5:30 PM - 7:00 PM
Register for this class if you will be attending in-person at Henry Ford Cancer-Detroit.
2800 W. Grand Blvd.
Detroit, MI 48202
Seats Available: 25
October 20, 2025 5:30 PM - 7:00 PM

Register for this class if you will be attending virtually. 

You will be sent the virtual link a few days before the event. 

Virtual Meeting
Detroit, MI 48202
Seats Available: 50
December 11, 2025 5:30 PM - 7:00 PM
Register for this class if you will be attending in-person at Henry Ford Cancer-Detroit.
2800 W. Grand Blvd.
Detroit, MI 48202
Seats Available: 25
December 11, 2025 5:30 PM - 7:00 PM

Register for this class if you will be attending virtually. 

You will be sent the virtual link a few days before the event. 

Virtual Meeting
Detroit, MI 48202
Seats Available: 50
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